She’s doing incredibly well off of the feeding tube. She still needs feeding therapy to help with her suck reflex but she’s taking 3-4 ounces per feeding by bottle, which is excellent. The feeding therapist will come out to our house a few times a week starting next week. She’s still on Elecare and they don’t anticipate we’ll try any solids at all until she is about 11 months actual, so we’re still about 4 months out. Right now she eats every 3 hours but the doctor said we could let her go 5 hours at night. YAY! We’ve been having to wake her up to feed her every 3 hours but her weight gain has been good enough that we can get a little sleep around here now!
Her opthamologist says her ROP is resolved (Praise the Lord! No laser surgery!) but that her tracking is behind. So we still have to make some frequent eye doctor visits. Although I am not worried, she’ll track Jeff or me as we walk across the room. She’s just really not that interested in toys yet so I don’t know that it’s so much that she can’t track well as it is that she’s just completely uninterested in doing it.
We have a referral to the orthapeadist for her fractures and to start physical therapy.
We just had her 6 month echocardiogram and EKG to follow up on her PDA ligation and her heart looks great! I am so thrilled. They are watching her heart closely because she has a small murmur and babies who have a PDA sometimes develop a thicker side to their heart. Her murmur seems to be so small they are not worried about it and she has no thickening of her heart walls at all! So we still have to do monthly EKGs and keep her on her blood pressure medicine but overall it was a great cardio visit.
